AFDSRC Family & Disability Publications | Other AFDSRC Publications

AFDSRC FAMILY & DISABILITY PUBLICATIONS

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In press / Submitted

Dew, A., Balandin, S., & Llewellyn, G. (submitted December 2009). Reciprocity between adult siblings with and without cerebral palsy. Journal of Applied Research in Intellectual Disabilities.

Emerson, E., Honey, A., Llewellyn, G. & Kariuki, M. (submitted April 2010). Social context and the subjective well-being of Australian adolescents and young adults with self-reported disability. Disability and Rehabilitation.

Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C., & Robertson, J. (submitted January 2010). Perspective: The health of disabled people and the social determinants of health. WHO Bulletin.

Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C., & Robertson, J. (submitted July 2009). Viewpoint: The social determinants of health and the health of disabled people. The Lancet (disability special edition).

Fraser, V., & Llewellyn, G. (submitted November 2009). Good, bad or absent: Discourses of parents with disabilities in Australian news media. Discourse & Society.

Honey, A., Emerson, E., Llewellyn, G., & Kariuki, M. (in press). Mental health and disability. In M. Blouin & J. Stone (Eds.), International Encyclopedia of Rehabilitation (accepted 5/6/10).

Kariuki, M., Honey, A., Emerson, E. & Llewellyn, G. (submitted March 2010). Mental health trajectories of young people after disability onset. American Journal of Orthopsychiatry.

Llewellyn, G., Balandin, S., Poulos, A., McCarthy, L. & Dark, L. (submitted April 2010). Disability and mammography screening: Intangible barriers to participation. Journal of Disability and Rehabilitation.

Mayes, R., Llewellyn, G., & McConnell, D. (in press). “That’s who I choose to be”: The mother identity for women with intellectual disabilities. Women’s Studies International Forum (accepted 5/6/09).

Poulos, A., Llewellyn, G., Balandin, S., McCarthy, L. & Dark, L. (submitted April 2010). Women with disability and the mammogram: An observational study to identify barriers and facilitators. Radiography.

Wedgwood, N. (in press). This sporting life: Sport in the lives of young men with physical impairments. Men & Masculinity, (special edition on disability) (accepted 20/7/09).

2010

Emerson, E., McCulloch, A., Graham, H., Blacher, J., Llewellyn, G., & Hatton, C. (2010). Socio-economic circumstances and risk of common psychiatric disorders among parents of young children with and without early cognitive delay. American Journal on Intellectual and Developmental Disabilities, 115(1), 30-42

Hatton, C., Emerson, E., Graham, H., Blacher, J., & Llewellyn, G. (2010). Changes in family composition and marital status in families with a young child with cognitive delay. Journal of Applied Research in Intellectual Disabilities, 23(1), 14-26.

Llewellyn, G., Bundy, A., Mayes, R., McConnell, D., & Emerson, E., & Brentnall, J. (2010). Development and psychometric properties of the Family Life Interview. Journal of Applied Research in Intellectual Disabilities, 23(1), 52-62.

Llewellyn, G. & Gustavsson, M. (2010). Understanding community in the loves of parents with intellectual disabilities. In G. Llewellyn, R. Traustadóttir, D. McConnell, H. B. Sigurjónsdóttir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp. 79-94). West Sussex: Wiley-Blackwell.

Llewellyn, G. & McConnell, D. (2010). Looking back on their own upbringing. In G. Llewellyn, R. Traustadóttir, D. McConnell, H. B. Sigurjónsdóttir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp. 33-47). West Sussex: Wiley-Blackwell.

Llewellyn, G. & McConnell, D. (2010). You have to prove yourself all the time: people with learning disabilities as parents. In G. Grant, P. Ramcharan, M. Flynn, M. Richardson, (Eds.), Learning Disability: A life cycle approach (2nd ed. pp. 311-328). Berkshire: Open University Press.

Llewellyn, G., Traustadóttir, R., McConnell, D. & Sigurjónsdóttir, H. B. (2010). Introduction. In G. Llewellyn, R. Traustadóttir, D. McConnell, H. B. Sigurjónsdóttir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp. 1-14). West Sussex: Wiley-Blackwell.

2009

Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (2009). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments or disabilities: 2001 and 2006. Australian Journal of Social Issues, 44(1), 37-51.

Honey, A., Emerson, E., & Llewellyn, G. (2009). The mental health of young people with disabilities: Impact of social conditions. Social Psychiatry and Psychiatric Epidemiology, DOI 10.1007/s00127-009-0161-y.

Honey, A., Llewellyn, G., Schneider, J., & Wedgwood, N. (2009). Approaching adulthood with a chronic health condition: Professionals’ and young people’s perspectives. In D. Bennett, S. Towns, E. Elliott, & J. Merrick (Eds.), Challenges in adolescent health: An Australian perspective (pp. 177-188). New York: Nova Science Publishers.

Mayes, R., & Llewellyn, G. (2009). What happens to parents with intellectual disability following removal of their child in child protection proceedings? Journal of Intellectual and Developmental Disability. 34(1), 92-95.

McConnell, D., Dalziel, A., Llewellyn, G., Laidlaw, K., & Hindmarsh, G. (2009). Strengthening the social relationships of mothers with learning difficulties. British Journal of Learning Disabilities, 37(1), 66-75.

McDonald, H., (2009). Australian Indigenous adolescents with chronic conditions: Sociocultural context. Journal of Paediatrics and Child Health, 45(11), 629-632.

Mill, A., Mayes, R., & McConnell, D. (2009). Negotiating autonomy within the family: The experiences of young adults with intellectual disabilities. British Journal of Learning Disabilities, DOI:10.1111/j.1468-3156.2009.00575.x

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2009). I-CAN: A new instrument to classify support needs for people with disability: Part I. Journal of Applied Research in Intellectual Disabilities, 22(4), 326-339.

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2009). The reliability, validity and practical utility of measuring supports using the I-CAN Instrument: Part II. Journal of Applied Research in Intellectual Disabilities, 22(4), 340-353.

2008

Dew, A., Balandin, S., & Llewellyn, G. (2008). The psychosocial impact on siblings of people with lifelong physical disability: A review of the literature. Journal of Developmental and Physical Disabilities, 20(5), 485-507.

Emerson, E., Honey, A., & Llewellyn, G. (2008). The well-being and aspirations of Australian adolescents and young adults with a long-term health condition, disability or impairment. Report for the Australian Research Alliance for Children & Youth (ARACY).

Emerson, E., Graham, H., McCulloch, A., Blacher, J., Hatton, C., & Llewellyn, G. (2008). The social context of parenting three year old children with developmental delay in the UK. Child: Care, Health & Development, 35(1), 65-70.

Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health, 32(1), 53-59.

Grace, R., Llewellyn, G., Wedgwood, N. Fenech, M., & McConnell D. (2008). Far from ideal: Everyday experiences of parents and teachers negotiating an inclusive early childhood experience in the Australian context. Topics in Early Childhood Special Education. 28(1), 18-30.

Llewellyn, G., Mayes, R., & McConnell, D. (2008). Towards acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellectual Disability, 21(4), 293-295.

Mayes, R. (2008). Becoming a mother: The experience of women with intellectual disabilities. Australian Journal of Occupational Therapy, 55(2), 149-150.

Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: mothers with intellectual disabilities creating their social support networks. Journal of Applied Research in Intellectual Disability, 21(4), 341-350.

McConnell, D., Mayes, R., & Llewellyn, G. (2008). Prepartum distress in women with intellectual disabilities. Journal of Intellectual & Developmental Disability, 33(2), 177-183.

McConnell, D., Llewellyn, G., & Mayes, R. (2008). Women with intellectual disabilities at risk of adverse pregnancy and birth outcomes. Journal of Intellectual Disability Research, 52(6), 529-535.

McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (2008). "Healthy Start". A national strategy for children of parents with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5(3), 194-202.

Mildon, R., Wade, C., & Matthews, J. (2008). Considering the contextual fit of an intervention for families headed by parents with an intellectual disability: A pilot program. Journal of Applied Research in Intellectual Disabilities, 21(4), 377-387.

Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21(4), 351-366.

Wedgwood, N., Llewellyn, G., Honey, A., & Schneider, J. (2008). The transition of adolescents with chronic health conditions from paediatric to adult services. Report for the Australian Research Alliance for Children & Youth (ARACY).

2007

Llewellyn, G., & Wedgwood, N. (2007). What do mothers want? Why mothers of children with disabilities send their children to mainstream early childhood settings. In A. M. Columbus (Ed.), Advances in Psychology Research, Vol 49 (pp. 107-135). Hauppauge NY: Nova Publishers.

Spencer, M. & Llewellyn, G. (2007). Working things out together: A collaborative approach to supporting parents with intellectual disabilities. In C. Bigby, C. Fyffe & E. Ozanne (Eds.). Planning and support for people with intellectual disabilities. Issues for case managers and other professionals (pp.171-190). London: Jessica Kingsley Press.

Wade, C., Mildon, R., & Matthews, J. (2007). Service delivery to parents with an intellectual disability: Family-centred or professionally-centred? Journal of Applied Research in Intellectual Disabilities, 20(2), 87–98.

2006

Balandin, S., Llewellyn, G., Dew, A., Ballin, L. (2006). ‘We couldn’t function without volunteers’: Volunteering with a disability, the perspective of not-for-profit organisations. International Journal of Rehabilitation Research, 29(2), 131-136.

Balandin, S., Llewellyn, G., Dew, A., Ballin, L., Schneider, J. (2006). Older disabled workers’ perceptions of volunteering. Disability and Society, 21(7), 677-692.

Booth, T., McConnell, D., & Booth, W. (2006). Temporal discrimination and parents with learning difficulties in the child protection system. British Journal of Social Work, 36(6), 997-1015.

Dew, A., Llewellyn, G., Gorman, J. (2006). Having the time of my life: An exploratory study of women with intellectual disability growing older. Health Care for Women International, 27(10), 908-929.

Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862-873.

Mayes, R,. Llewellyn, G., & McConnell, D. (2006). Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research, 8 (2-3), 120-131.

McConnell, D., & Llewellyn, G. (2006). Health of mothers of school age children with disabilities. Australian and New Zealand Journal of Public Health, 30(10), 572-574.

McConnell, D., Llewellyn, G., & Ferronato, L. (2006). Context contingent decision-making in child protection practice. International Journal of Social Welfare, 15(3), 230-239.

McConnell, D., Llewellyn, G., Matthews, J., Hindmarsh, G., Mildon, R., & Wade, C. (2006). Healthy Start: a national strategy for children of parents with learning difficulties. Developing practice: The Child Youth and Family Work Journal, 16, 34-42.

Mildon, R., Wade, C., & Matthews, J. (2006). Intellectual disability and parenting. Every Child, 12(1), 12-13.

Poulos, A., Balandin, S., Llewellyn, G., & Dew, A. (2006) Women with cerebral palsy and breast screening by mammography. Archives of Physical Medicine and Rehabilitation, 87(2), 304-307.

Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50(12), 926-936.

Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 29 (12), 767-778.

2005

Booth, T., Booth, W., & McConnell, D. (2005) The prevalence and outcomes of care proceedings involving parents with learning difficulties in the Family Courts, Journal of Applied Research in Intellectual Disabilities, 18(1), 7-17.

Booth, T., Booth, W., & McConnell, D. (2005). Care Proceedings and Parents with Learning Difficulties: Comparative Prevalence and Outcomes in an English and Australian Court Sample. Child & Family Social Work, 10(4), 353-360.

Llewellyn, G., & McConnell, D. (2005). You have to prove yourself all the time: People with learning disabilities as parents. In G. Grant, P. Goward, M. Richardson & P. Ramcharan (Eds.), Learning Disability: A life cycle approach to valuing people. (pp. 441-467). New York: Open University Press.

Llewellyn, G., McConnell, D., Thompson, K., & Whybrow, S. (2005). Out-of-home placement of school-age children with disabilities and high support needs. Journal of Applied Research in Intellectual Disabilities, 18(1), 1-6.

McConnell, D., & Llewellyn, G., (2005). Social inequality, the deviant parent and child protection practice. Australian Journal of Social Issues, 40(4), 553-566.

Poulos, A., & Llewellyn, G. (2005). Mammography discomfort: a holistic perspective derived from women’s experiences. Radiography, 11(1), 17-25.

2004

Booth, T., Booth, W., & McConnell, D. (2004). Parents with learning difficulties, care proceedings and the family courts: Threshold decisions and the moral matrix, Child and Family Law Quarterly, 16(4), 409-421.

Dew, A., Llewellyn, G., & Balandin, S. (2004) Post-parental care: A new generation of sibling-carers. Journal of Intellectual & Developmental Disability, 29(2), 176-179.

Llewellyn, G., Balandin, S., Dew, A., & McConnell, D. (2004). Promoting healthy, productive ageing: Plan early, plan well. Journal of Intellectual & Developmental Disability, 29(4), 366-369.

Llewellyn, G., Gething, L., Kendig, H., & Cant, R. (2004). Older parent caregivers' engagement with the service system. American Journal on Mental Retardation, 109(5), 379-396.

Llewellyn, G., & McConnell, D. (2004). Mothering capacity and social milieu. In S. Esdaile & J. Olsen (Eds.), Mothering Occupations: Challenge, Agency, and Participation (pp.174-192). Philadelphia: F.A. Davis.

Llewellyn G., Thompson K., & Whybrow, S. (2004). Activism as a mothering occupation. In S. Esdaile & J. Olsen (Eds.), Mothering Occupations: Challenge, Agency and Participation. (pp. 282-305). Philadelphia: F.A. Davis Publishers.

Mayes, R., Llewellyn, G., & McConnell, D. (2004). Becoming a mother: The experiences of women with intellectual disabilities. Journal of Intellectual Disability Research, 48(4-5), 381.

McConnell, D., Mayes, R. & Llewellyn, G. (2004). Antenatal care and birth outcomes for women with intellectual disabilities (ID). Journal of Intellectual Disability Research, 48(4-5), 381.

Spencer, M., Llewellyn, G., McConnell, D., & Heard, R. (2004). Improving practice: Assisting generic family support workers assess the support needs of parents with intellectual disability (ID). Journal of Intellectual Disability Research, 48(4-5), 381.

2003

Llewellyn, G. (2003). Family decision-making in later life. In Nolan, M., Lundh, U., Grant, G., & Keady, J. (Eds.)(pp.145-182). Partnerships in Family Care: Understanding the caregiving career. Open University Press.

Llewellyn, G. & McConnell, D. (2003). Mothering capacity and social milieu. In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation. (pp.174-192) F.A. Davis Publishers.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2003.) Promoting health and home safety for children of parents with intellectual disability: A randomised controlled trial Research In Developmental Disabilities 24(6) 405-431.

Llewellyn, G., Gething, L., Kendig, H., & Cant, R. (2003) Invisible carers: Facing an uncertain future. University of Sydney.

Llewellyn, G., McConnell, D., & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse and Neglect, 27, 235-251.

Llewellyn, G., McConnell, D., Mayes, R. (2003). Health of mothers with intellectual limitations. Australian and New Zealand Journal of Public Health, 27(1), 17-19.

Llewellyn, G., Thompson, K., Whybrow, S., McConnell, D., Bratel, J., Coles, D., & Wearing, C. (2003) Supporting families: Family well-being and children with disabilities. University of Sydney and the Spastic Centre of NSW.

 

McConnell, D., Llewellyn, G., Mayes, R., Russo, D., & Honey, A. (2003). Developmental profiles of children born to mothers with intellectual disability. Journal of Intellectual and Developmental Disability, 28(2), 1- 14.

2002

Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support networks.  Journal of Intellectual Disability Research, 46(1), 17-34.

Llewellyn, G., McConnell, D., Russo, D., Mayes, R., & Honey, A. (2002). Home based programs for parents with learning difficulties: Lessons from practice. Journal of Applied Research in Intellectual Disabilities, 15, 341-353.

Llewellyn, G., Thompson, K., & Fante, M. (2002). Inclusion in early childhood services: ongoing challenges. Australian Journal of Early Childhood, 27(3), 18-23.

McConnell, D., & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 1-21.

McConnell, D., Llewellyn, G., & Ferronato, L. (2002). Disability and decision-making in Australian care proceedings. International Journal of Law, Policy and the Family, 16, 270-299.

Strike, J., & McConnell, D. (2002). Parents with intellectual disability: Just the same, only different. Interaction, 15 (4), 11-15.

Strike, R., & McConnell, D. (2002). Look at me, listen to me, I have something important to say. Sexuality and Disability, 20 (1), 53-63.

2001

Llewellyn, G. (2001).Accommodation requirements for high support need residents with disabilities. Report to the Office of Community Housing. University of Sydney.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2001). Healthy and safe. NSW parent-child health and wellbeing research and development project.  Report to the NSW Department of Ageing, Disability and Home Care Services. University of Sydney.

Spencer, M. (2001) Proceed with caution: The limitations of current parenting capacity assessments, Developing Practice, Winter, 16 - 24.

2000

Llewellyn, G., Thompson, K., & Fante, M. (2000). Young children with disabilities in NSW Children's Services. In NSW Department of Community Services, Insights into research. Four studies on early childhood issues and children's services. Sydney: Author.

McConnell, D., & Llewellyn, G. (2000). Disability and discrimination in statutory child protection proceedings. Disability and Society, 15 (6), 883-895.

McConnell, D., Llewellyn, G. & Ferronato, L. (2000). Parents with a disability and the NSW Children's Court. Report to the Law Foundation of NSW.  University of Sydney.

1999

Llewellyn, G., Dunn, P., Fante, M., Turnbull, L., & Grace, R. (1999). Family factors influencing out-of-home placement decisions. Journal of Intellectual Disability Research, 43(3), 219-241.

Llewellyn, G., & Fante, M. (1999).  Young children with disabilities in NSW Children's Services. Sydney: Office of Childcare, Department of Community Services.

Llewellyn, G., McConnell, D., Cant, R., & Westbrook, M. (1999). Support networks of mothers with intellectual disability: An exploratory study. Journal of Intellectual and Developmental Disability, 24(1), 7-27.

Llewellyn, G., McConnell, D., Grace, R., & Dibden, M. (1999). Parents with intellectual disability and older children: Strategies for support workers. Report to the Victorian Government Department of Human Services, Melbourne.

Llewellyn, G., Thompson, K., & Proctor, A. (1999). Parents with disabilities and early intervention services. International Journal of Practical Approaches to Handicap,  23 (1), 3-8.

1998

Llewellyn, G., McConnell, D. & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others, and their service workers. Research in Developmental Disabilities, 19 (3), 245-260.

McConnell, D., & Llewellyn, G. (1998). Parental disability and the threat of child removal. Family Matters, 51, 33-36.

1997

Llewellyn, G. (1997). Parents with intellectual disability learning to parent: The role of informal learning and experience. International Journal of Disability, Development and Education, 44 (3), 243-261.

Llewellyn, G., Bye, R., & McConnell, D. (1997). Parents with intellectual disability and mainstream agencies. International Journal of Practical Approaches to Disability, 21(3), 9-13.

Llewellyn, G., McConnell, D., & Bailey, M. (1997). Developing a screening instrument for teacher referral of students with special needs to therapy services. Australasian Journal of Special Education, 27(1), 4-17.

Llewellyn, G., & Poulden, D. (1997). Case Management. Sydney: University of Sydney.

McConnell, D., Llewellyn, G., & Bye, R. (1997). Providing services to parents with intellectual disability: Parent needs and service constraints. Journal of Intellectual and Developmental Disability, 22(1), 5-17.

1996

Llewellyn, G., Dunn, M., & Fante, M. (1996). Families with young children with disabilities and high support needs. Sydney: Ageing and Disability Department.

1995

Llewellyn, G. (1995). Relationships and social support: Views of parents with mental retardation. Mental  Retardation, 33 (6), 349-363.

Llewellyn, G. (1995). "First hand experience". Parents with learning difficulties. Disability, Pregnancy & Parenthood International, 11 (July), 10-12.

Llewellyn, G., & Brigden, D. (1995). Factors affecting service provision to parents with intellectual disability: An exploratory study. Australian and New Zealand Journal of Developmental Disabilities, 20 (2), 97-112.

Llewellyn, G., Mc Connell, D., & Bye, R. (1995). Parents with intellectual disability. Support and services required by parents with intellectual disability. Report to the Disability Services Sub-committee (DDSC) of the Standing Committee of Community Services and Income Security Administrators, Department of Human Services and Health, Canberra.

1994

Llewellyn, G. (1994). Parenting: A neglected human occupation. Parents' voices not yet heard. Australian Occupational Therapy Journal, 41(4), 173-176.

Llewellyn, G. (1994). Being a parent with intellectual disability: A battle against the odds, Community Bulletin, 18(1), 9-13.

Llewellyn, G. (1994). Generic family support services: Are parents with intellectual disability included? Mental Handicap Research, 7(1), 64-77.

Llewellyn, G., &  McConnell, D. (1994). The SRT Screening Instrument for Therapy Services in Schools.  Report to the NSW Department of Community Services and NSW Department of School Education, Sydney. University of Sydney.

1993

Llewellyn, G. (1993). Talking with parents with intellectual disability. In C. Johnston (Ed.), Does this child need help? Identification and early intervention. Sydney: Australian Early Intervention Association (NSW Chapter) Inc.

Llewellyn, G. (1993). Parents with intellectual disability: Facts, fallacies and professional responsibilities. Community Bulletin, 17(1), 10-19.

Llewellyn, G. & Maher, L. (1993). Assessment of school students' needs for therapy services. Australian Journal of Physiotherapy, 39(3), 181-185.

1990

Llewellyn, G. (1990). Parents with an intellectual disability: Perspectives from the literature. Australia and New Zealand Journal of Developmental Disabilities, 16(4), 369-380.